an identity worth having {EB Awareness Week}

EB is not who she is.

She just happens to have EB.

Who is she?

She’s a daughter, a friend, a sister.

She’s a granddaughter, a niece, a cousin.

She’s sassy, funny, and never meets a stranger.

She’s fearfully and wonderfully made.  Exactly how she is.

“Fearfully and wonderfully made.”  THAT is her identity.

She is known by One who knew before time the trajectory her life would take and calls her beautifully His.

fearfully and wonderfully made

Today’s Clickables:

DEBRA of America is an organization that supports families.  When we came home from China with Julianne, we received a box of supplies & samples to help us adjust to the daily ins and outs of wound care.  When we were holding Julianne’s file and doing our due diligence concerning her medical needs, I emailed the DEBRA nurse, and she responded with, “why don’t you give me a call”, and she talked to me for quite a while about what life with EB would or could look like.  There are branches of DEBRA worldwide helping families who live daily with Epidermolysis Bullosa. There is great information here, as well as ways to be involved.

This Etsy shop make Christmas tree ornaments, and the some of the proceeds from each of these goes to DEBRA.

I praise you, for I am fearfully and wonderfully made. Wonderful are your works; my soul knows it very well.

Psalm 139:14

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