I’m going to tell you a story, and it’s a story several years in the making.  It’s the story of two women, one who had to let go of control a bit and accept some help, and one who wouldn’t stop asking… Read More

Saying Yes to Giving Grace

**It was a privilege to be able to share this part of our adoption journey.  Some times when I write I write to process information in my own head and heart.  This time, the processing has been completed, and completed a while… Read More

About this time last year, I was in discussions with the principal at the school my children attend.  The discussion revolved around the potential need to add another 2nd grade class during the 2017-2018 school year, and would I be interested in… Read More

  Epidermolysis Bullosa (EB) is a group of inherited skin disorders. The last week of October every year is EB Awareness Week.  Since it is known as “The Worst Disease You Never Heard Of”, we choose to share bits and pieces of… Read More

I used to believe that there would come a day when our family dynamic would feel “normal” –  that we would mesh together in a way that was seamless – that the memory of the time Before would be blotted out by… Read More

I got a box delivered to our house today.  It was sent by a friend and filled with wound care materials.  You see, this family found themselves with an excess of supplies when their six year old daughter passed away last week… Read More

“Mommy, I have another blister.  Can I pop it all by myself?” Her voice was so hopeful.  She knows what to do.  She’s watched us pop more blisters than I can keep track of during the two years we’ve had her home… Read More

“Mom.  One day, when I have good skin all over me, I can have earrings, right?” *gulp* Because, truth is, unless there is a radical gene-altering cure found, EB is a part of who she is, and will be a part of… Read More

Last year?  Last year we skipped her preschool Christmas program because last year?  It would have been too much.  Just. Too. Much.  She would not have been able to process the amount of sensory input flooding her system.  She would have freaked… Read More

If I could watch the world from the sidelines, I would. I don’t like being the center of attention, at least not for long periods of time.  It’s taken a decent number of years to be able to say “thank you” when… Read More