Last year?  Last year we skipped her preschool Christmas program because last year?  It would have been too much.  Just. Too. Much.  She would not have been able to process the amount of sensory input flooding her system.  She would have freaked out to be completely off of the “normal” schedule associated with a day …

If I could watch the world from the sidelines, I would. I don’t like being the center of attention, at least not for long periods of time.  It’s taken a decent number of years to be able to say “thank you” when complimented… hidden, unseen, invisible is what I have preferred to be. And then …

“The lavender is more rare,” he told me in the crowded marketplace teeming with voices and noises completely different from those I was accustomed to at home.  I glanced down at the little face, the rare butterfly who flitted into my life and knew the circle of lavender is what I needed. One day, I …

She’s obsessed with knowing if she can do certain things, “when she gets bigger, like a mommy” Have kids Take care of her own boo-boos Make dinner Drive the car Do her own laundry Fix her own hair Miss Independent likes doing things for herself, but she’s also okay with having me do some things …

We just got back from a little family vacation.  Didn’t go too far away, and have I ever mentioned how thankful I am to live within driving distance to the beach? I love the beach. And you know who else loves the beach? That’s right!  Miss Julianne is a HUGE fan of the beach!  I …

Lots going on in the medical part of our journey with Julianne.  Sometimes I feel like we’re on the road trip of a lifetime, you know, the kind that takes a lifetime. 😉  Because let’s be real.  Road trips aren’t always sunshine and daisies, but you can learn some good stuff when you’re stuck in …

The eyes are the window of the soul English Proverb On February 18th, I saw a picture, yet another picture of a little one without a family. Around the same time, I found out that the little one who had previously grabbed my heart and twisted it around her sweet dimpled fingers had a family …

You saw my daughter today when we were out at Costco.  I was just by the meat counter when I noticed you, noticing her. A few steps further, I picked up a container of blueberries, my daughter’s favorite, and noticed you, noticing her. A few steps further and you were right beside us, staring down …

the Lord’s purpose prevails

A few days ago, someone who works in the Children’s Ministry at our church called and asked if I would say something, a “God at work” story at the training meeting we were having the following Sunday.  I agreed to pray about it, but didn’t feel like I had anything to say!  Today, I taught …

a rock and a hard place

EB is awful. Any type, all types, all severities. It’s awful. It’s pain, it’s itching, it’s discomfort. It’s anxiety, it’s fear, it’s unpredictable. It’s never ending research, it’s trial and error, it’s learning lessons the hard way. Today, EB has me feeling completely at a loss. Julianne’s type of EB often does better if the …