If I could watch the world from the sidelines, I would. I don’t like being the center of attention, at least not for long periods of time.  It’s taken a decent number of years to be able to say “thank you” when… Read More

“The lavender is more rare,” he told me in the crowded marketplace teeming with voices and noises completely different from those I was accustomed to at home.  I glanced down at the little face, the rare butterfly who flitted into my life… Read More

She’s obsessed with knowing if she can do certain things, “when she gets bigger, like a mommy” Have kids Take care of her own boo-boos Make dinner Drive the car Do her own laundry Fix her own hair Miss Independent likes doing… Read More

We just got back from a little family vacation.  Didn’t go too far away, and have I ever mentioned how thankful I am to live within driving distance to the beach? I love the beach. And you know who else loves the… Read More

Lots going on in the medical part of our journey with Julianne.  Sometimes I feel like we’re on the road trip of a lifetime, you know, the kind that takes a lifetime. 😉  Because let’s be real.  Road trips aren’t always sunshine… Read More

The eyes are the window of the soul English Proverb On February 18th, I saw a picture, yet another picture of a little one without a family. Around the same time, I found out that the little one who had previously grabbed… Read More

You saw my daughter today when we were out at Costco.  I was just by the meat counter when I noticed you, noticing her. A few steps further, I picked up a container of blueberries, my daughter’s favorite, and noticed you, noticing… Read More

the Lord’s purpose prevails

A few days ago, someone who works in the Children’s Ministry at our church called and asked if I would say something, a “God at work” story at the training meeting we were having the following Sunday.  I agreed to pray about… Read More

a rock and a hard place

EB is awful. Any type, all types, all severities. It’s awful. It’s pain, it’s itching, it’s discomfort. It’s anxiety, it’s fear, it’s unpredictable. It’s never ending research, it’s trial and error, it’s learning lessons the hard way. Today, EB has me feeling… Read More

Trial (n.)  the act of trying, testing, or putting to the proof A week ago, Julianne started a new medicine.  It’s in the final testing stages needed to have approval for the general marketplace.  We don’t know if she has the real thing, or if she has a placebo.  We’re trying… Read More