Today marks the day when we saw Julianne for the first time face-to-face.  We had loved her from afar for nine long months, and finally, we saw her.  I will never forget the feelings from that day.  The way my fingertips felt… Read More

Last year?  Last year we skipped her preschool Christmas program because last year?  It would have been too much.  Just. Too. Much.  She would not have been able to process the amount of sensory input flooding her system.  She would have freaked… Read More

We just got back from a little family vacation.  Didn’t go too far away, and have I ever mentioned how thankful I am to live within driving distance to the beach? I love the beach. And you know who else loves the… Read More

We are ALMOST to the fifteen month mark having Julianne home with us!  It seems like a long time and a short time all at once.  At this point, I don’t remember much of what our life was like before we had… Read More

Lots going on in the medical part of our journey with Julianne.  Sometimes I feel like we’re on the road trip of a lifetime, you know, the kind that takes a lifetime. 😉  Because let’s be real.  Road trips aren’t always sunshine… Read More

Our trip to China for Julianne was challenging in so many ways. Culture shock?  Yes. Jet Lag?  Oh yes. Food challenges & wondering WHY Red Bull in China is not carbonated?  Yes, yes. Of ALL of our 13 days there, the most… Read More

January 26th… ONE YEAR since we first saw our Julianne! Some call it “gotcha” day.  Nope.  I’m not going that route.  That day was HARD.  Hard for us, hard for her.  We got something, and it was a lot of anxiety.  So,… Read More

It’s not my party {so I’ll cry}

I’m torn, y’all. Torn between the past I know my daughter has, and wanting to pretend that the past doesn’t exist in that way.  It’s a tough thing for a girl who loves history; I majored in it and taught it… it’s… Read More

Let. It. Go.

Last week?  We went to Disney World! Yes.  We did. We went to Disney World with 2 adults, 4 children, and fairly low expectations. It. Was. Fun. Lots of fun! Really! I wondered if we were a tad crazy to take our… Read More

an identity worth having {EB Awareness Week}

EB is not who she is. She just happens to have EB. Who is she? She’s a daughter, a friend, a sister. She’s a granddaughter, a niece, a cousin. She’s sassy, funny, and never meets a stranger. She’s fearfully and wonderfully made…. Read More