Tag: DEBRA America

if I could choose…

  Epidermolysis Bullosa (EB) is a group of inherited skin disorders. The last week of October every year is EB Awareness Week.  Since it is known as “The Worst Disease You Never Heard Of”, we choose to share bits and pieces of… Read More

an identity worth having {EB Awareness Week}

EB is not who she is. She just happens to have EB. Who is she? She’s a daughter, a friend, a sister. She’s a granddaughter, a niece, a cousin. She’s sassy, funny, and never meets a stranger. She’s fearfully and wonderfully made…. Read More