It’s been exactly a week since we found out that my husband’s grandmother died. Again, it was not a shocking event as her health had greatly deteriorated in the week before her passing, but it was still sad. I was immediately faced… Read More
Matt’s grandmother died this morning. Well, her body died. Her soul is dancing, and beautiful, and whole, in the presence of Jesus right now. It was not unexpected, but that doesn’t make it easy.
May 15th is MPS Awareness Day. For those of you who have never heard of this disease, you can read more by clicking on this link. I became aware of this disease last summer. A lady I was in a Bible… Read More
Yesterday I mentioned that I was going to be attending the visitation for Hannah, the little 17 month old baby who died from complications of MPS I. I went with 3 other ladies who were in the Bible study with me when… Read More
All day long I have been checking my email, praying that I wouldn’t get an update email about Hannah because I knew it would be to say that she had gone to be with Jesus. At the same time, I was clinging… Read More
So, the little girl I’ve written updates on periodically… I got a little while ago what is probably her last update. Her parents both wrote a note explaining that the doctors don’t know what else to do for Hannah. She is too… Read More
Well, the one-year old baby I’ve written about a couple of times with MPS I is not doing well again… but this time, it’s really bad. She’s been through bacterial infections, fungal infections, ventilators, bed sores, feeding tubes, x-rays, and every other form… Read More