Tag: dying

death, a preschooler, and Christianity

It’s been exactly a week since we found out that my husband’s grandmother  died.  Again, it was not a shocking event as her health had greatly deteriorated in the week before her passing, but it was still sad. I was immediately faced with the issue of how to communicate the event to my two older …

a passing

Matt’s grandmother died this morning.  Well, her body died.  Her soul is dancing, and beautiful, and whole, in the presence of Jesus right now.  It was not unexpected, but that doesn’t make it easy.

MPS Awareness Day

  May 15th is MPS Awareness Day.  For those of you who have never heard of this disease, you can read more by clicking on this link. I became aware of this disease last summer.  A lady I was in a Bible study with had a granddaughter undergoing testing, but the doctors were not sure …

hannah’s visitation

Yesterday I mentioned that I was going to be attending the visitation for Hannah, the little 17 month old baby who died from complications of MPS I.  I went with 3 other ladies who were in the Bible study with me when we were introduced to Hannah’s grandmother.  I’m really glad that we went together. …

the email i dreaded all day…

All day long I have been checking my email, praying that I wouldn’t get an update email about Hannah because I knew it would be to say that she had gone to be with Jesus.  At the same time, I was clinging to the hope that maybe, just maybe, there had been a miraculous turnaround, …

my heart is breaking…

So, the little girl I’ve written updates on periodically… I got a little while ago what is probably her last update.  Her parents both wrote a note explaining that the doctors don’t know what else to do for Hannah.  She is too sick, there are too many things wrong with her, and the medicines that …

update on baby Hannah

Well, the one-year old baby I’ve written about a couple of times with MPS I  is not doing well again… but this time, it’s really bad.  She’s been through bacterial infections, fungal infections, ventilators, bed sores, feeding tubes, x-rays, and every other form of invasive procedure I’ve heard of.  And it still amazes me that she …