Tag: EB Awareness Week

a look into the future {EB Awareness Week}

Seems like EB is getting more attention in the media these days.  Often, the attention is focused on the kids, the “butterfly children”.  I get it.  Seeing kids suffering in the way that so many do is heartbreaking and gut-wrenching.  I see… Read More

Pay It Forward! {EB Awareness Week}

Epidermolysis Bullosa is a really easy condition to educate others about.  It’s so… out there… no avoiding it.  People see her, they ask questions, we answer questions. The questions and comments are a part of our life, and believe me, we’ve heard… Read More

EB Awareness Week!

Today is the kick-off of EB Awareness Week. If you’ve read my blog for a while, you know what EB is. If you’re fresh to the awesomeness found in this corner of the internet, you’re about to find out what it is!… Read More