Tag: EB

it started with a question…

“What kind of pajamas work best for EB kiddos? Suggestions??” That’s what I posted one day not long after coming home with Julianne in a private EB (Epidermolysis Bullosa) group on Facebook.  This group has been so helpful to us in our new journey, and I figured if anyone had a good suggestion, it would …

what to bring? {I have no idea what I’m doing but I hope I’m ready}

Update:  The things we brought helped us make it through our China trip, but I didn’t bring enough!  I ended up making some stuff work I found in a Chinese pharmacy!  The people there were super helpful.  Since have Miss J, we realized her case of EB is more severe than we originally thought.  I …

Photography Friday: a pre-adoption “maternity” shoot!

I knew that at SOME point before we got Julianne, I wanted to do a family photography session, kind of a maternity session style.  I don’t have “belly pictures” of Julianne, and I never will.  Regardless, we wanted to document the waiting time, just like we documented the pregnancies with the first three. Pregnancy. Adoption. …

Awesome August

August was an awesome month in our adoption journey.  We hit several major milestones this month, which makes it definitely a month worthy of its own post. Milestone #1:  DTC When we began this adoption journey, I kept having flashbacks to my time as an Air Force brat.  The abbreviations!  Dear heavens, THE ABBREVIATIONS!!! Just …

being “matched”

I want to record our matching process because, well, I want to. I have had this post written for a few months now, but have been waiting until I was ready to share it.  Our matching was the most difficult experience we have been through as a couple. Many friends know that Julianne is being …