Tag: hope

in memory

I got a box delivered to our house today.  It was sent by a friend and filled with wound care materials.  You see, this family found themselves with an excess of supplies when their six year old daughter passed away last week… Read More

Earrings in Heaven {World Rare Disease Day 2017}

“Mom.  One day, when I have good skin all over me, I can have earrings, right?” *gulp* Because, truth is, unless there is a radical gene-altering cure found, EB is a part of who she is, and will be a part of… Read More

finding JOY

This morning, I had had it.  You know, when you reach the point where you are just tired trying to do it all yourself?  I was there.  Actually, I’ve been there for a few days. The solution? Time with my best Friend…. Read More

Guest Post: November the 5th

For the first time ever, I’m posting something I haven’t written myself!  A friend of mine recently saw to completion one of the most heartbreakingly joyful years of her life… and when I read what she wrote about it, I knew it… Read More

in memory

Last night, as I was tucking my three into bed, kissing sweet foreheads & pulling up blankets… Jesus won another victory over death. My grandpa’s earthly body died last night.  As my babies fell asleep for the night, he fell asleep and woke… Read More