Tag: joy

Earrings in Heaven {World Rare Disease Day 2017}

“Mom.  One day, when I have good skin all over me, I can have earrings, right?” *gulp* Because, truth is, unless there is a radical gene-altering cure found, EB is a part of who she is, and will be a part of… Read More

first day of PRESCHOOL!!

Today is a big day, y’all. This little peanut?  She is officially a PRESCHOOLER!! To Julianne’s China-mama, should you ever wonder… this baby girl is doing so well.  During these big “firsts” for her,  I always feel a twinge of loss layered… Read More

ocean deep

If you fly over the ocean in a jet plane, it looks serene.  At some point during my childhood I realized that crash-landing in the ocean wasn’t any better than crash-landing on dirt; the ocean isn’t as forgiving as it appears to… Read More

what’s in a name?

WE.                 HAVE. A. NAME!!!!! And yes, I do think that statement is worthy of all caps.  I do. 🙂 Matt and I have been discussing (even before we started paperwork) our list of potential… Read More

finding JOY

This morning, I had had it.  You know, when you reach the point where you are just tired trying to do it all yourself?  I was there.  Actually, I’ve been there for a few days. The solution? Time with my best Friend…. Read More

Guest Post: November the 5th

For the first time ever, I’m posting something I haven’t written myself!  A friend of mine recently saw to completion one of the most heartbreakingly joyful years of her life… and when I read what she wrote about it, I knew it… Read More

for a “friend” (and maybe a little for me, too)

The number of times this phrase has slipped through my lips. “I’m not judging, I’m just sayin’…” Followed by my pronouncement of the wrongness of an action or a person. Too many times to count. I recently talked to a “friend” who… Read More