Tag: kids

#memorylaneJanuary

If I could hashtag my thoughts right now, this is what it would be. We are quickly approaching the our One Year mark with Julianne, and I can’t help but reminisce a bit  a lot. I find myself thinking about what her last days in the orphanage were like.  Was she happy?  Did she know …

Mommy, you love me?

My daughter has started asking, “Mommy, you love me?” like she’s just not sure.  She’s reaching the point where the words, “love you” are starting to mean something.  For months she has said, “wuv you!” in response to our I-love-yous, and although it warmed my heart to hear it, I knew that she didn’t mean …

What Does Life with EB Look Like?

What does life with EB look like? It looks like swinging on swings at the park. Epidermolysis Bullosa is a genetic connective tissue disorder. There are many types and sub-types, each affecting the individual in different ways. Regardless of type or sub-type, one thing that I have noticed about kids with EB, and their families, …

Best of the Week

I really really really like taking pictures.  I take a LOT of pictures.  Some with my “real” camera, most with my iPhone camera (PS- the iPhone 6 camera is amazing.  Love it.) Often times I will use pics in a post, but sometimes there isn’t a post that will do justice to a particular picture. …

Can I?

I hear this question more times per day than I care to count. Me to the four kids: “It’s time for lunch… let’s sit down at the table.” Julianne: “Can I?” Me to the four kids: “We’re going to go to the pool…let’s get our bathing suits on.” Julianne: “Can I?” Me to the four …

The Box, The Book, and The Blanket {creating memories}

It’s August, which automatically means that many a parental mind jumps to “school mode”. School mode is when we think about the supply list(s) we have to shop for, in our house we take out the box of school uniforms and see what will still work from last year (I LOVE UNIFORMS!!) and what needs …

family worship {what I’ve learned}

A few weeks ago, the Hubs and I made the decision to start being more intentional about worshipping together as a family.  It’s something we’ve both wanted to do, but for various reasons, really hadn’t tried and stuck with it. There are so many things that make family worship time with littles challenging.  We are …

stop.

Last Friday, my son tripped, caught himself when he fell, and fractured his radius.  I knew immediately from the look of panicked pain on his face that something wasn’t right.  I had seen that look before, just two-and-a-half years earlier when his older sister fell off the balance beam at gymnastics class and snapped her …

July Gifts {Day Fourteen}

Three Gifts Yellow… It took me a while before I liked the color yellow.  When I was younger (much younger!) I was wearing a pale yellow shirt one day.  A boy in my class told me that with my blonde hair, fair skin, and yellow shirt, I looked yellow all over, like a banana. I …

halfway through the summer with EB

Caring for a child with Epidermolysis Bullosa is one of these things that requires a pretty hefty learning curve.  As we are now 5 months home with Julianne, we’re still very much in the learning stage.  I mean, we do have a bit of a routine, and I have learned how to handle the wound …