Leave a Comment
Posted on February 27, 2017 by Whitney
“Mom. One day, when I have good skin all over me, I can have earrings, right?” *gulp* Because, truth is, unless there is a radical gene-altering cure found, EB is a part of who she is, and will be a part of… Read More
Category: Adoption, Epidermolysis Bullosa, God and the Church, special needs realities,
Tags: butterfly children, EB, EB adoption, Epidermolysis Bullosa, faith, hope, joy, rare disease, World Rare Disease Day 2017
Enter your email address to subscribe to this blog and receive notifications of new posts by email.
Join 704 other followers
Sign me up!
Blog at WordPress.com.